Both my daughter, Anna, and I suffer from Hypermobile EDS which has a great impact on our way of life. Ehlers-Danlos syndrome (EDS) is a genetic disorder in which the structure of connective tissue is abnormal due to a gene mutation. This results in abnormally fragile and hyper-extensible tissues throughout the body which can lead to a range of multi-systemic symptoms; the effect on the body is widespread and not limited to one body system.

There are different types of the condition and a vast spectrum of symptoms are experienced by our community. Although many lead full and active lives, EDS can lead to physical disability and some rarer types can be life limiting. There is a lack of knowledge about EDS in the medical profession and it is therefore often misdiagnosed or overlooked.

Find out what EDS UK does to help by visiting

I have designed three kits which takes the logo and motto of EDS Support UK and any profit from these kits will go straight to them to help with the valuable support work they are doing.